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Study highlights the economic burden affecting individuals with sickle cell disease

In a study published today in Blood Advances, researchers found that privately insured individuals with sickle cell disease (SCD) spend approximately $1.7 million on disease-related medical expenses over their lifetime. These findings highlight the enormous economic burden affecting individuals living with SCD and raise questions about how medical advancements, like gene therapy, may one day factor into the cost of care.

SCD is the most common inherited red blood cell disorder in the United States, affecting an estimated 100,000 people. According to the Centers for Disease Control and Prevention (CDC), SCD affects one out of every 365 Black or African American births and one out of every 16,300 Hispanic American births. Considering that SCD disproportionately affects Black and Hispanic communities, such high health care costs put even further inordinate financial constraints on these populations.

This research,…

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